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Old 02-27-2008, 02:05 PM   #1
aintgotnun
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Join Date: Nov 2007
Location: Justin, Texas
Posts: 333
Default Lupus Walk

My wife is a home health nurse and one of her young friends died of Lupus at the end of Jul05. On 26April there is a walk in honor of her young friend Kodie Gouge (15Aug91 – 30Jul05). She will be a member of the KODIE’S KREW team with Michelle Trewin (Kodie's mom) as the Team Captain.

My daughters use to go visit her with my wife and play with Kodie and became very attached to her. Kodie would always break out the Easy Bake Oven for the girlies. They along with my wife were devastated when she died. Kodie was only 13. I only got to meet Kodie once or twice while she was in one of her many stays at a hospital. She was a great kid with a smile on her face even though she was in pain.

I would like to encourage you to goto the web site and maybe kick in a few dollars to help support Kodie's Krew in her honor.


My wife's page.
https://www.kintera.org/faf/donorReg...upId=206630824

Kodie's Krew page.
https://www.kintera.org/faf/donorReg...upId=201445212

The main site.
http://walkforlupusnowdallas.kintera...?ievent=261314


Thanks,

greg




Here's Kodie's story as written by her in '04........
Quote:
Kodie’s Story
My name is Kodie., In April I got diagnosed with lupus. The reason why they found it , was that I was riding my horse and my finger with my ring on got really swollen. So my Granny and Pappy took me to the ambulance place and they got it off.

The next day my Granny took me to the doctor, they referred me to Scottish Rite Hospital. So we went over there and they did blood work on me then they decided that I had lupus. I did not know what it was at that time. They started my steriod treatment all summer long. It was not that bad. Then we when to live with my Meemaw,

we where going to stay in our old house but my aunt moved in there. We lived with my memaw and pawpaw. I was hot all the time I was so miserable. On a weekend, I went to play golf with my pawpaw. This was in January, he let me go with him. When got up to get ready my legs felt funny they where numb,I did not know what was going on.

So I ignored it. When I was in the golf cart.

And it hit me when I was going to get up and go in the club. They just tingle really bad. So I handle it in till I got home. Then I told my mom. So she took me to Cooks Childrens Hospital, there I laid thinking "What was going on". It started right then when I was thinking, there began the worse back pain ever. They did a MRI on me. I did not like that at all they had to put a IV in me. I got really scared in the big tube. Finally we got it over with. After that we waited for ever. They finally knew what was wrong with me they came in to the room and said ‘she has Transverse Myelitis and has to be hospitalize for this’. My mom said’ ok’. They transported me over to Dallas Childrens Hospital. I was hurting really bad so in the ambulance they kept giving me morphine. Lots of it. When I got there we stayed in the ER for a very long time. When I tried to get up to go to the bath room I fell and my mom caught me. So they carried me to the toilet I tried to pee but I could not. They had to put a catheter in me. They also did a spinal tap on me. That hunt really bad. A saw 12 doctors at one time. I came up with lots of rashes. They did not know what was going on. I thought it was my lupus rash but now one knows. I finally got a room. I was on morphine for days. And I could not move my legs. They got my pain under control. And I got better with lots of high dose of steroids. It made my checks really big. I don’t like it at all. All the doctors thought I should get chemo treatments. So than I started that and my hair thin out really bad. I got better and could walk. I got a bunch of stuff and a lot of people came and saw me. I missed my basketball game so they taped it ,that was really cool of all them people that did that for me THANK YOU. I went home after 2 in half weeks. I could not go back to school because I might get sick from the other kids. I did home bound for a month in a half. I really did bad on that. Then a few weeks later me and my friend Stormie went babysitting. It was fun, when the night came we all got scared. So my mom came over. My back was hurting really hurting bad. When I went home I tried to go to sleep I could not. So I went in my moms room, and she gave me a pain pill and that helped me go to sleep for a few hours. Than I woke up and I was getting where I could not walk , so my mom took me to the ER. This time I did not have a rash. But they did have to put a catheter in me. We waited in the ER 22 hours. I slept the whole time because I was hurting. They did a spinal tap on me now that hurt. When I got to my room I just laid there and watched Disney Channel. I was on a lot of meds. I had to learn to take pills. I was not very good then at taking pills but now I am very good.

A couple of weeks went by and I got a lot of spinal taps and MRI’s. One day I was laying there and my numbness moved up and to my left arm. I told my big doctor and they had me do breathing treatments. It was had to breathe and swallow. At that time I thought I was just fine. They would not let me eat. Because they got scared that it might not let me swallow. One night they came in there every night like they always did, and they did not wake me up all the way. And I did really bad. So my doctor got scared and came in there and turned all the lights on and woke me up. He told me if I don’t do good I will go to ICU. I was scared so I tried my best and I did not go to ICU. But the next day they sent me there. I was really really scared. During the night I could not sleep because I could not move any thing but my head and right arm. They thought I would be on a ventilator.

I just laid there for a long time. I woke up at 4:30 in the morning and ask my mom if I was going to die? She said she did not know. At that time I was getting my chemo. The next day I woke up and I could move my left arm. It was like I was touched by an angel, and it was a miracle. I got better and I went back to the floor. I was very happy. I had my 13 birthday party there I don’t remember nothing at all. After 5 weeks they let me go to Baylor at Our Childrens House. When I first got there I could not move my left arm very good. So I got a electric wheel chair. And I got lots of therapy. I got where I could walk a little bit, now I can walk a lot better. After 4 months I was so tried of every thing. But now I am in a wheel chair but I can walk with help. I just want kids out there to not give up and fight, there is hope for you. Thats my story. Kodie Gouge

The Fall of 2004

Kodie Leigh Gouge August 15th 1991 July 30th 2005
There is also a donation form via pdf format that can be downloaded and a check sent in.

thanks
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